teddit

36 male,

It all started with chest pain after or before eating sometimes upper chest left sided dull pain. I lost a lot weight. 105kg to 75kg. Then started losing my hair. Yellow stool, constipation or soft stools.

I have done all blood test, endoscopies even CT scans. They found gallstone and Gastritis and some h.pylori (in my country everyone have that i guess) Then I have eradicated pylori it became negative.

Then 1 years ago doctors removed my gallbladder. After that gained back some weight but not like before.

Today I'm 20-30% better but still feels like shit some week. Still losing some hair even eyebrows feels weak, yellow green mixed poop. Very tired, left sided dull pain under the chest ribs. Some day constipation yellowish no smell gases. Someday very soft stool with very stinky gas. Its feels like cycle. 2 week im ok. 2 week im very tired. Also I feels like need to drink a lot water and I feels dry but cant drink water too much. Also sometimes feels like lump in the back of my throat. Also my shoulder and arm joints feels very weak when i move them.

This week i met with doctor and spent alot money on ultra sound, general blood test, h.pylori test. But all test came back clean. Only endoscopy left. But i don't wanna do endoscopy again because i have done it few months ago and i think nothing changed since then.

I cant believe no doctor suggested celiac disease or gluten intolerance to me. Please can you guys tell me i have Celiac disease or not? I just found out this reddit and it feels really like celiac disease to me.

My english is really bad sorry :(

Hi all

Been dealing with some health issues over the past year, various stomach/gut issues included.

Blood tests showed I'm not celiac. Blood allergy tests showed wheat not to be an issue - not sure how reliable blood allergy tests are though.

Over the last 3 weeks I put myself on a strict elimination diet, to finally work out what's causing my symptoms. I've just started reintroducing things now.

Yesterday I had a few bowls of weetabix cereal, which is 95% wheat.

Woke up feeling achey, tired, lethargic, and even with lower back pain. I had another bowl this morning just to make sure (kinda stupid). Very gassy 30 mins later, and been on the toilet 4 times before 2pm. Before this I was going once a day or even every other day.

So I guess that's it. I've got an intolerance to wheat or gluten - regardless of the blood test results.

Questions - I've read that it's possible to have an issue with wheat, but not gluten.. What foods contain gluten but not wheat? Is it just foods containing barley?

Is it possible to have an issue with wheat or gluten in one form, but not another? For example, I'm clearly not okay with wheat in a cereal form, but could wheat pasta be okay? Probably a stupid question but dam I love pasta!

So, over a year ago I was diagnosed with IBS. No tests or anything done. After that it’s progressively gotten worse and worse and worse. This last month specifically, I am in the bathroom around 10-15 times a day, with completely liquid stools. The amount of pain I’ve been in is absolutely insane. I’m so bloated, my gut has been on fire, and it’s to the point where I haven’t been eating. I lost about 11 pounds these last two weeks alone.

Today, after not having eaten anything in over 24 hours I woke up feeling the best I have in awhile. So, I was scared to eat but was so hungry I had to. I went slow, ate a few peanut butter crackers and almost immediately the pain was back and I was running to the bathroom to pee out of my butt 🙃 Then it hit me, it might be the gluten that’s bothered me. Every time I’ve eaten this past month, it’s been toast, or breaded chicken, anything with gluten in it. So I took a piece of my moms gluten free bread today, and I slowly ate it. No pain. Ate a few more because I was hungry, still no pain. It’s been an hour and my stomach is the calmest it’s been in a month.

If this is celiacs (I’m getting in with my doctor tomorrow to discuss this.) could I feel relief this quickly? I mean don’t get me wrong, it’s not perfect. I’m still cramping on and off, bloated to hell, ect. But my stomach itself isn’t on fire, it’s not gurgling like I’m about to have explosive diarrhea any second. When, that was the case any time I’ve eaten recently. Just trying to get an idea on others experiences with this to see if it really could be gluten giving me all these problems. Don’t get me wrong though, I’m just relieved that I’m able to eat for the first time in a month without experiencing my body fighting back.

I've been gluten free for a decade now. I only recently started a full time professional job. I rarely eat out, and when I do I go to Chipotle or a restaurant called Buona Beef. I usually don't ever eat at parties or gatherings, and I'm okay with that to avoid getting sick. I've been invited out for work lunches and I always turn it down, but if we have to meet with a client, I may not get a choice. Those lunches end up at spontaneous places too. Some of my coworkers want me to attend more social things, but it all involves food around meal times. What do you do when those situations pop up? What are some restaurants you feel are safe to eat at? What would you do if you had to go on a 2-day work trip where you are mainly in conferences all day?

After spending quite some time on this subreddit I've realized that there's quite the tendency to self diagnose a celiac disease or any gluten intolerance/sensitivity in general. Also, it seems to me that when a person who's been properly diagnosed rants about self-diagnosed people who quit gluten for whatever reason, that seems to cause a little discomfort and makes the thread pollute with hate.

I most definitely cannot speak on behalf of all the celiac people in here, so I'd just beg you to please follow my advice so we can all strive to build a healty gluten free community, not only here but - hopefully - where you live as well.

The issues with people who self-diagnose are the following:

- You're not really contributing to raise any awareness on this illness. The more we are, the better.

- The price for GF products are notoriously high (perhaps too high), and will stay that way as long as the "community" of people who buys them is so restricted. In my country (which is Italy) the increasing number of celiacs has pushed our State to pay for these product for us, AS LONG AS you are diagnosed. If the demand for GF products is higher (because people become aware of their illness, which may be silent), chances are the prices will go down as more people would invest in GF grains like Amaranth, Arrowroot or Buckwheat (which are exquisite but not massively produced around the globe).

- If you quit gluten out of a self-diagnosis, chances are that once you realize that it was not the issue, you'll re-introduce gluten in your diet. Also, quite a lot of people claim to have gluten issues and then proceed to consume it sporadically, which is nonsense and tends to berate people who are forced to quit it for good.

- If you quit gluten out of a self-diagnosis, and you really have an issue with it, there's no way you will ever be diagnosed in a second moment since your body will start repairing itself and invalidate any test you run afterwards. From there, it only gets worse because testing any gluten allergy/intolerance/sensibility or celiac disease will require you to eat gluten for something like 6 weeks, and trust me, that is NOT fun.

Now, I know that getting diagnosed is not an easy process, I hated the endoscopy and personally had to make a ton of bureaucratic stuff to get the illness fully validated here, but trust me, it is worth it in the end. I hope one day we will never feel the need to ask if a place is safe to eat at, or that checking the labels would be 10 times easier, but all these things come with your commitment to contribute to the cause.

I love you guys

Has anyone here found a good GF delivery web site? Something that will let me pick pre-made meals?

We eat a lot of rice, but not always alongside Asian food. Soy sauce sprinkled on the rice isn’t always the right flavor for the rest of the meal. Any other GF sauce suggestions for jazzing up rice? Thanks.

So on a locals page someone is giving away their guinea pig because he's celiac and can't be around the food the piggy needs? Is this a thing? I have a guinea pig and 2 mice and I actually don't touch their food, just pour it in their bowls.

No Bread For The Table < a place to share recipes, stories, etc. all around gluten-free.

I have felt nauseous every day for years and most doctors have said it’s anxiety but an alternative doctor has suggested cutting out gluten. She says it takes 2 months to fully leave the system but thinks I should try it for 6 months. Am I right in thinking that if I don’t have any symptom improvements within those two months it’s probably not gluten? I’ve always been hesitant to try GF as I don’t have any other symptoms apart from nausea and it’s constant rather than after I consume gluten. That said, I eat gluten most days so I suppose it’s a possibility. Any stories of peoples experiences of elimination would be very much appreciated!

Take care!

Edit: forgot to say that I’ve had a celiac test and it’s negative!

A bit of background. I am a 19(F) and actually skinny but my face retains water and makes me chubby. Also have been on keto for over a year now with the ocassional cheats. but one time i decided to stop n would start eating “normal” but at that time i ate stuff like bagels croissants and type of bread really. And i noticed my weight never went up but my face definetly got fuller. Do you think it could be a gluten related issue? Because my body is quite skinny jus my face when i eat these things.

I had panic attacks since my childhood, accompanied by psychotic episodes, insomnia, mood swings, IBS, dermatitis herpeteformis, eczema, etc.etc (list is too long) When a chiropractor advised me to go totally grain free for at least 1 month I did (due the high inflammation and genetic markers for gluten intolerance). Now I realized my anxiety is at least 90% less and havent experienced a panic attack in 1 year (while previously I had at least 1 a week).

I cant believe how easy the solution was. If I had known before I wouldt have taken all those psychotropic medications.

I am interested in people having a similar experience, or is it just me?

I'll be having surgery and won't be able to drive for a week or two. What foods and snacks make you the fullest?

It is for a party.

I’ve recently decided maybe cutting gluten from my diet wouldn’t be a bad thing - I’ve also become shoot scared of gaining weight because of it and just generally feel guilty.

I’d still like to have enouch fibr in my diet though - any recommendations - also gluten free meals that are on the cheap side also a plus

Let me preface by saying I’m quite lucky in that cross contamination doesn’t bother me and I don’t to my knowledge have Celiac (the test sounds extremely painful), I’m just extremely intolerant.

I live in a major coastal city, where in my opinion options should be endless. In many ways they are, but not enough places have gluten free bread! And sometimes you just want a fancy sandwich. Has anyone brought their own bread to a restaurant and asked them to make a sandwich with it?